The more you know
the better you can help.
More information for family caregivers
Getting started with family caregiving
- AARP — Start your family’s conversation about caregiving. Download a family caregiver guide that’s full of helpful checklists and definitions. Available in multiple languages. https://www.aarp.org/caregiving/prepare-to-care-planning-guide/
- CaregiverStress.com — Find worksheets that help you manage the many aspects of caregiving. If your loved one has dementia, give the Dementia-Related Behaviors Chart to his or her doctor. http://www.caregiverstress.com/senior-safety/health-information- management/senior-emergency-kit/worksheets-checklists/
Consider an eldercare specialist
If you’re caring for an older adult, think about talking with an eldercare specialist.
These professionals specialize in aging-related issues. They can talk with you about the one you’re caring for and the best services and equipment to meet her needs.
To find an eldercare specialist in your area, ask your loved one’s doctor.
General family caregiving information
- CareGiving.com — Join this community’s daily chat sessions with other family caregivers, and check out the eye-opening webinars, tons of tips from family caregivers, and more. They hold an annual conference that’s full of tools and information just for family caregivers. https://www.caregiving.com/
- Family Caregiver Alliance — Click on your state to find local resources for family caregivers. https://www.caregiver.org/
- AARP — Get helpful information on a wide variety of topics, including medical, financial, and legal aspects of family caregiving. https://www.aarp.org/caregiving/
Information on aging
- Eldercare Locator — Enter your zip code or a topic to find assistance in your community for older adults and family caregivers. https://eldercare.acl.gov/Public/Index.aspx
- National Institute on Aging — Learn how a geriatric care manager can help with an older family member. https://www.nia.nih.gov/health/what-geriatric-care-manager
Information on managing the hospital stay
- Caregiving Pathways — If a family member is in the hospital or you anticipate a medical crisis, download a free family caregiver guide to managing the hospital stay.
Online tools that help coordinate information and tasks
- Caring Bridge — This site acts as a central coordination hub for you and your family and friends. https://www.caringbridge.org/
- Doodle — Scheduling family meetings is so easy with this site. https://doodle.com/
- Lotsa Helping Hands — Set up a Help Calendar and send the link to people who ask how they can help. You can list things like providing a family meal, giving a ride to a doctor appointment, or scheduling a visiting time. https://lotsahelpinghands.com/
- eCare21 — Long-distance caregivers can use this app and a wearable smart device to monitor a loved one’s heart rate, glucose levels, and other health data.
- Medisafe — Use this app to monitor medications, see side effects to look out for, and more. Doctors can use the app to connect with patients. https://medisafe.com/
Safety at home
- Life Alert — Use this medical alert system to summon help for anyone having a home health emergency. http://www.lifealert.com/
Learning about health conditions
- U.S. Office on Women’s Health (part of the U.S. Department of Health and Human Services) — Find information on dozens of health topics. Most of the information is not just for women. https://www.womenshealth.gov/a-z-topics/
- The Office of Minority Health (part of the U.S. Department of Health and Human Services) — See information on health issues common to African Americans, Asian Americans, American Indians/Alaska Natives, Latinas, Native Hawaiians, other Pacific Islanders, and more. Language assistance is available for many languages. https://minorityhealth.hhs.gov/omh/content.aspx-?ID=146&lvl=1&lvlID=3
Managing medications and caring for wounds
- AARP — Find time-saving tips on managing multiple medications. https://www.aarp.org/caregiving/health/info-2017/medication-management.html
- Next Step in Care — See videos for family caregivers on caring for wounds, treating pressure ulcers, maintaining ostomy bags, and more. https://www.nextstepincare.org/videos/
- Medicare.gov — Learn how Medicare works. https://www.medicare.gov/what-medicare- covers/your-medicare-coverage-choices/whats-medicare
- Medicare.gov — Learn how hospice care works. https://www.medicare.gov/what-medicare-covers/what-part-a-covers/how-hospice-works
- Federal Benefits — Learn about government benefits for veterans. https://www.va.gov/opa/publications/benefits_book/2017_Federal_Benefits_for_Veterans.pdf
- Military Caregiver Support — Find resources for military caregivers. https://www.woundedwarrior.af.mil/Portals/23/documents/083016_CaregiverSupportResources2016.pdf?ver=2016-08-30-163523-473
- The Conversation Project — See the Conversation Starter Kit and other tools to help your family begin difficult conversations about the end of life. https://theconversationproject.org/
- International End of Life Doula Association — If you’re interested in having someone help your family prepare for and manage the end of life, use the registry on this site to locate an end-of-life doula. https://www.inelda.org/find-doula/
- Caregiver Action Network — Get valuable information on rare diseases.
- Rosalynn Carter Institute for Caregiving — You’ll find an extensive list of additional resources. http://www.rosalynncarter.org/caregiver_resources/
- Northern Westchester Hospital — This Northwell Health hospital has a family caregiver center that inspired the creation of many other centers. This site features a diverse list of resources that include a number of blogs for family caregivers. http://nwhc.net/online-resources-for-family-caregivers